Anne Stephenson

MD, PhD

Scientist, Li Ka Shing Knowledge Institute

Biography

Dr. Stephenson attended medical school and received her internal medicine training at the University of Toronto. She completed her training in Respiratory Medicine at the University of British Columbia in Vancouver in 2000 and has been working at St. Michael’s Hospital in the Adult CF Program since 2001. In 2010 she successfully completed her PhD in Clinical Epidemiology at the University of Toronto followed by a Post-Doctoral Fellowship in health services research. In addition to her clinical work, she oversees the Canadian CF Patient Registry (CCFR) and has utilized this resource for her own research in order to examine predictors of morbidity in CF. Most recently, she has linked the CCFR to the health administrative databases at IC/ES to examine emerging complications of CF in the ageing CF population. In addition, she collaborates with CF researchers internationally using national CF Registry data to conduct population-based epidemiologic research in CF.

Recent Publications

  1. Love, AJ, Desai, S, Cheng, SY, Stephenson, AL, Stanojevic, S, Franciosi, AN et al.. Reduction in 3-Year Risk of Death or Lung Transplantation for Individuals with Advanced CF Lung Disease Treated with Elexacaftor/Tezacaftor/Ivacaftor. Ann Am Thorac Soc. 2024; :. doi: 10.1513/AnnalsATS.202405-451RL. PubMed PMID:39480171 .
  2. Jad, R, Ma, X, Stanojevic, S, Illango, A, Tullis, E, Gilmour, J et al.. Longitudinal changes in BMD in adults with cystic fibrosis. J Bone Miner Res. 2024;39 (12):1716-1721. doi: 10.1093/jbmr/zjae139. PubMed PMID:39221749 .
  3. Semenchuk, J, Naito, Y, Charman, SC, Carr, SB, Cheng, SY, Marshall, BC et al.. Impact of COVID-19 infection on lung function and nutritional status amongst individuals with cystic fibrosis: A global cohort study. J Cyst Fibros. 2024;23 (5):815-822. doi: 10.1016/j.jcf.2024.07.019. PubMed PMID:39191560 .
  4. Laflamme, OD, Johnson, N, Steele, K, Chavez, L, Cheng, SY, Rabin, HR et al.. Socioeconomic burden of cystic fibrosis in Canada. BMJ Open Respir Res. 2024;11 (1):. doi: 10.1136/bmjresp-2024-002309. PubMed PMID:39122474 PubMed Central PMC11331897.
  5. Albaiz, FA, Semenchuk, J, Ma, X, Lightfoot, D, Gonska, T, Tullis, E et al.. Clinical outcomes after liver transplant in people with cystic fibrosis: A systematic review and meta-analysis. J Cyst Fibros. 2024;23 (6):1112-1121. doi: 10.1016/j.jcf.2024.06.012. PubMed PMID:38942722 .
  6. Maqsood, A, Ma, X, Tullis, E, Ryan, CM, Anand, A, Stephenson, AL et al.. Sleep breathing disorder frequency, risk factors, and treatment among adults with cystic fibrosis. J Cyst Fibros. 2024;23 (1):144-149. doi: 10.1016/j.jcf.2023.12.005. PubMed PMID:38123381 .
  7. Cheema, ZM, Gomez, LC, Johnson, N, Laflamme, OD, Rabin, HR, Steele, K et al.. Measuring the burden of cystic fibrosis: A scoping review. J Cyst Fibros. 2024;23 (5):823-830. doi: 10.1016/j.jcf.2023.11.014. PubMed PMID:38044160 .
  8. Radtke, T, Urquhart, DS, Braun, J, Barry, PJ, Waller, I, Petch, N et al.. Cardiopulmonary Exercise Testing Provides Prognostic Information in Advanced Cystic Fibrosis Lung Disease. Ann Am Thorac Soc. 2024;21 (3):411-420. doi: 10.1513/AnnalsATS.202304-317OC. PubMed PMID:37879036 PubMed Central PMC10913772.
  9. Zampoli, M, Sykes, J, Verstraete, J, Cheng, SY, Morrow, B, Pepper, MS et al.. Global disparities in cystic fibrosis outcomes prior to CFTR modulators: A CF registries cohort study in South Africa and Canada. J Cyst Fibros. 2024;23 (2):334-340. doi: 10.1016/j.jcf.2023.09.003. PubMed PMID:37704465 .
  10. Alshehri, M, Ramos, KJ, Sykes, J, Ma, X, Stanojevic, S, Quon, BS et al.. Cystic fibrosis survival outcomes following second lung transplant: The north American experience. Clin Transplant. 2023;37 (11):e15097. doi: 10.1111/ctr.15097. PubMed PMID:37563332 PubMed Central PMC10840857.
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Affiliations & Other Activities

  • Assistant Professor, School of Graduate Studies, University of Toronto
  • Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, University of Toronto