Intended Audience: The Transform level is appropriate for scientists, trainees and research staff who have experience with patient- and community-partnered research and want to deepen their understanding on how to further advance their patient and community engagement practices with an Equity, Diversity and Inclusion (EDI) lens. This level requires collaborative training with patient and community partners and ongoing practice with an assessment of competency by patient and community partners as well as academic colleagues.
LEx Movement is a collective impact network in the United Kingdom connecting, supporting and strengthening the capacity of lived experience leaders to create systems-level change and help all our communities thrive. The Lived Experience Leadership Report compiles interviews and insights collected from LEx Elders and Leaders.
Section to consider: Inclusivity in Global Research
Collaborative strategies and tools that are relevant to scholars at multiple levels.
A tool for facilitating collaborative knowledge exchange
A librarian has developed citation templates for oral teachings shared by members of Indigenous communities.
The IAP2 Federation has developed the Spectrum to help groups define the public’s role in any public participation process. It walks through each of the five stages: Inform, Consult, Involve, Collaborate, and Empower and the public participation goal and promise to the public for each. The IAP2 Spectrum is quickly becoming an international standard.
Considering the unique nature of the Transform level, the creators of this Resource Guide recommended Research teams collaboratively plan workshops that are focused on the following key elements:
|How to ensure leadership by people with lived experience of intersections of exclusion||Community partner, Scientist, Trainee, Peer/Lived Experience Researcher, Research Staff||
|Models of lived experience leadership, shared leadership in research||Community partner, Scientist, Trainee, Peer Lived Experience Researcher, Research Staff||