Patient Engagement: Tools & Resources

Patient Engagement in Health Research:

What is it? Why do it?

What are its impacts?

• Strategy for Patient-Oriented Research (SPOR), CIHR – A comprehensive overview of CIHR’s strategic plan for public / patient engagement in research
• Public Involvement in Research: Is it worth it? – A useful overview that, perhaps predictably, answers the question by saying “it depends.”
• Motivations of Researchers & Patients – A thoughtful and provocative exploration of the motivations of researchers and patients with suggestions for change
• Roles of Patients and Public in Research – An outline of the different roles patients and members of the public play

Getting Started:

• INVOLVE – INVOLVE is part of the National Institute for Health Research (NIHR) in the UK and is focused on patient involvement in research. This is an introduction for those new to patient involvement in research.
  • Payment Recognition for public involvement
  • Advice on budgeting for public involvement in research
  • Cost calculator for budgeting public involvement
• Breaking Boundaries Strategic Review of Public Involvement, NIHR – Recommendations for public involvement